April 2009
1 post
Do you get your cancer screenings done and done on...
I finally got the results of biopsies done earlier this month. Though only 45 years old, my primary care doctor pushed that I have a colonoscopy done. The tests results were this: A precancerous polyp was removed and all other tests came back negative.As a result of being caught early, the doctor reassured me that I would have no problems. I can not begin to tell you how blessed I am to know...
why I will stay.
I spoke today to the Neurosurgeon’s physician’s assistant today. He was just as much involved in my care as the surgeons. After updating him on my progress I told him about a question I was asked over the weekend. I was asked why, after a horrific 3 1/2 years would I be willing to stay involved in leading a on line support group for people with Trigeminal Neuralgia, now that I was...
March 2009
11 posts
conversation went well
I spoke to my father today. The conversation went well. I sense he is not wild about the thought of me possibly go through another surgery, but understood I would not be thinking about it if there were other options.
Life is good,
Sarah
Watched phones seldom ring.
I am sitting here with my gut in HUGE knots. I have sent a e-mail to my father asking him to call me, as I do not have his new phone number on me. I have not told anyone in my family about the fact I am meeting with the Neurosurgeon again in two weeks. This time to ask that he consider referring me for the necessary testing that is required before one is considered a candidate for Deep Brain...
It is official
It is official. I have become a Twitter addict. If I do not get my daily dose of Twitter postings known as Tweets I go through withdrawals. ;o) Just kidding with that last comment,but I must say the people I follow are amazing. My favorites on the professional bicycling tour, men and women making a difference in the battle on cancer. Just in time for St. Patrick’s day I started following...
for my friends on facebook, a update....
I just signed on to facebook. I also linked my blog here to my facebook page. Thought I better explain about the Trigeminal Neuralgia and the surgery I had to correct the problem so friends reading this for the first time would understand what I was talking about.
The Trigeminal Nerve is also known as the Fifth Cranial nerve. It is the largest of the Cranial nerves. It goes from the middle of...
Life is good
Life is good. For the first time since my MVD surgery I have had no pain. YEAH.
I am counting my blessings,
Life is good,
Sarah
Called the electric company today.......
I called the electric company today. I was not protesting my bill but was asking that I get a one week extension so I could work to wards getting the money they were asking for. Every step of the way, the person I was talking to just kept saying, Sorry, if you do not have the $50.00 in our office by today at 4pm we will be shutting you electricity off tomorrow at 12am. I had brain surgery, and a...
sometimes the biggest battle is 99.9% mental
I have been sitting here talking to a neighbor. I was telling her about things I was doing to keep my sanity when I was in ICU for five days in February, with a lumbar drain in my back, not being able to lift my head off the pillow for 23 1/2 hours a day. I watched so much Public Broadcasting, I have not watched it since I have been home. Lost count, when I counted 300 holes in the tiles of...
my first bike ride in almost four years was on one...
My first bike ride in almost four years was on a madsen cargo bike. Can tell you they are sweet bikes. Check them out at www.madsencycles.com. If you speak to Jared, tell him Sarah, the bell ringer from Portland sent you.
Life is good,
Sarah
check out this great website
www.freerice.com
It is a neat way to feed the world’s hungry and test your knowledge in the process.
Sarah
Am angry as hell and I am not going to take it...
I went to church today to learn that my pastor’s wife lost her battle with Chordoma last night. Now that the shock of it is wearing off, the anger is setting in. One week before Christmas last year my friend’s cousin lost his battle with Lymphoma, leaving behind his wife and five year old little girl. In the words of the famous Albert Finney quote from the movie Network, ’ I am...
February 2009
2 posts
am listening to a amazing pianist
I am sitting here listening to a amazing pianist. His name is Maskim. He is not known here in the US but, is well known in Europe. A friend in England sent me his c.d.s. Bless you, Jo. :o)
His life story is just as amazing playing. He talks about seeing his friend’s piano when he was 8 years old and knowing then being a classical pianist is what he wanted to be. He also talks about being in...
What a ride
My MVD surgery was on January 14, 2009. The surgery was successful but, I hit a common post-op complication. Cerebral Spinal Fluid (CSF) leaks are the most common complication. Most of the time the leak will happen at the incision. Mine came through my left nostril. Nothing like having your nose leak like a leaky faucet for ten days. Drip, drip, drip. Concerned about my getting bacterial...
January 2009
3 posts
where did the time go?
Thought six weeks would be so long. It went so fast. Surgery is tomorrow. Life is going to get better.
See you all in a couple of weeks.
Sarah
reminded to think positive
8 days before surgery my apartment living room ceiling springs a major leak. I posted to my blog at www.livingwithtn.comabout this. The blog post is 8 days away from mvd surgery and roof springs a leak. I was encouraged to see the positive in this. Maybe what I need to do, is move my daybed to the living room so I can enjoy the new paint job after surgery.
In the mean time I would encourage you...
interesting model of care
Leave it to the brits to come up with this ideal. I wonder how many lives here in the us could be saved using this model.
http://bitly.com/yN87
Sarah